Overview
The Clinical Core of the Boston University Alzheimer’s Disease Core Center is a research registry in which patients with Alzheimer’s disease and normal controls are followed year after year. Each year, all of the participants in the research registry receive a physical and neuropsychological evaluation. Most participants in the research registry are followed for their entire life and donate their brains to research after death.
The participants in the research registry are also contacted regularly to determine if they wish to take part in research studies conducted by investigators at Boston University and at other research institutions in the area. All research studies must be approved by the leadership of the Alzheimer’s Disease Core Center before participants are contacted.
To the participants and staff working in the Clinical Core, the research registry is known by the acronym “HOPE” which stands for “Health Outreach Program for the Elderly.”
Activities
- Weekly Case Consensus Conference
- Weekly Alzheimer’s Disease Research Seminar
- Annual HOPE Participant Appreciation Luncheon
Clinical Data Requests
If you are interested in obtaining data from the BU ADC Neuropathology Core, please download the letter detailing application instructions as well as the Clinical Data & Participant Request Form. Please read the instructions carefully, complete and submit the request form, along with supporting documentation, directly to the ADC Administrator, Ms. Beverly Young at bmyoung@bu.edu.
Key Personnel
- Robert Stern, PhD, Acting Director
- Robert C. Green, MD, MPH, Director (on Sabbatical)
- Angela L. Jefferson, PhD, Neuropsychologist
- Brandon Gavett , PhD, Neuropsychologist
- Sanford Auerbach, MD, Neurologist
- Alan Mandell, MD, Neurologist
- Anil Nair, MD, Neurologist
- Eric Steinberg, MSN, RN, CS, CNAP, Project Manager
- Stephanie Sikora, MA, Associate Coordinator
- Catherine Pfau, MHHS, Administrator
- Angela Dwyer, Participant Coordinator/Administrative Assistant
- Natalie Joffe, Psychometrician, Brain Tissue Donation Program Coordinator
- Elana Cook, Psychometrician
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